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 41 
 on: April 18, 2014, 04:10:34 PM 
Started by Izzy_*now* - Last post by Izzy_*now*
Hi Hops,

To tell it like it is, I have to mention the paralysis of 1969, as that was when my legs, particularly my lower legs began with poor circulation because of the paralysis. I had no problems for 40 years being diligent in skin care, etc. and no pain (from the accident), but my legs kept on demineralizing.

Then 5 years ago, 2009, that car backed out and hit me, breaking an upper leg bone, bringing on excruciating pain (femur, hip end) That’s when I was so drugged, that I was treated for Tourette’s Syndrome and Schizophrenia. I read these on the reports in the spring of 2012 and the case was settled in 2013. So for 44½ years I was still in fairly good shape even “without a left hip’, with the pain lessening, to next to nothing when the Polymyagia Rheumatica set in and caused weakness then pain in my arms and I am on prednisone. I learned that that drug can weaken the bones. I was already in “enough trouble“. I was left with worse balance, now having no hip and any one of my falls could have broken something, and suddenly one did, Dec 18, 2013.

No surgery, for bone condition so a knee brace was recommended and I had never known of such a thing. It was heavy plastic, material  and Velcro, with a circular security piece placed at either side of the knee, but was prone to sliding with movement (as it was not held up by a rope around my neck, for instance.) The rules posted for the nurses was that my leg was to be tended to daily (and I didn’t figure out why except that would be when it was washed for me.) It was also to keep an eye on my skin, adjust the slippage etc. This was NOT done! Some nurses never saw that brace before and “were afraid” and refused to touch it. One said it wasn’t in his Union Contract. When Karla visited one day she saw how those “circles” were too low, and undid the straps to find the beginning of a wound at my ankle, from the bottom of the brace being too low. The brace had to be undone, my broken leg lifted out, washed, the stockinet changed, brace adjusted and re-strapped in a special order of the 5 straps.

I don’t know how much responsibility I bear, but would have been more aware if they tended to me daily (after 2 weeks I wore the original stockinet to Cottonwoods…..run by hospital... and I had only one change of stockinet while in Cottonwoods, plus I was aware of the pain and the broken bone and how was this strange brace working? So 2 weeks of very few ministrations, while the compromised skin on my lower leg rested on this hard plastic and, feeling nothing, it broke down a little more each day while I know now for a fact it was never removed from the brace, nor the skin underneath ever checked. Cottonwoods for 4 more weeks--"short term stay" until it is felt the patient can go home. 4 checks in those four weeks and all I could see was the one on my inner ankle.

Arrangements were set up for Home Care and the first nurse, Cathie, remarked immediately how this ought to never have happened and told me about the sores in which areas. She took pictures and wrote up a report for some “tops dogs!  I had Home Care until I was rid of the brace but not healed at 2 months, and only able to go to the clinic myself when I felt safe without the cast and an only partially healed bone. (I still hold my knee in place as my lower leg is moved to get to all the sores.

The schizophrenia is still on my chart, as I was asked by a nurse this past Monday. She almost didn’t ask, she said, because she felt it wasn’t true. I asked if this would be following me around and I forget if she had said she would follow it up….how can records be changed, when the attending doctor has left the area? I saw him only once and did not know what was on my reports!

Onward to reply to lighter

Xx
Izzy


 42 
 on: April 18, 2014, 01:21:29 PM 
Started by BonesMS - Last post by BonesMS

The letter about the service dog really bugged me.  There seems to be a lack of privacy where disability is concerned.  I can understand that a person can be curious about something that is in some way unusual for them to see.  But surely they should also have the sense and good manners to know that their curiosity shouldn't take priority over the other person's privacy and their right to get on with their day as they see fit.


I agree!  There have been times where I've encountered idiots who did not respect boundaries.  One day, I was riding the subway  with a fellow classmate, who happens to be Deaf-blind and we were conversing in Sign Language.  Without warning, some total strangers invaded our space, stuck their fingers in our ears and started praying at the top of their lungs.  I went off!  They tried to justify their actions by quoting Bible verses at me and I quoted a Bible verse back at them about they NEED TO ASK PERMISSION FIRST!  If I had REALLY lost my temper, I could have done some physical damage!  GRRRRRR!!!!!



Wow, Bonesie, that is truly shocking behaviour.  What is it with some people??!!  It takes so little effort to just be polite (or to just keep your mouth shut if that's easier!).

I hope you're sleeping better now  ((((((((((((((((((((((((((((((Bones)))))))))))))))))))))))))))))))))))))

Thanks, Tupp.

I wish I could understand why some people act so stupid.  It just FROSTS me when they attempt to quote the Bible as an excuse for outrageous behavior.  *Shaking my head*

 43 
 on: April 18, 2014, 11:39:37 AM 
Started by BonesMS - Last post by Twoapenny

The letter about the service dog really bugged me.  There seems to be a lack of privacy where disability is concerned.  I can understand that a person can be curious about something that is in some way unusual for them to see.  But surely they should also have the sense and good manners to know that their curiosity shouldn't take priority over the other person's privacy and their right to get on with their day as they see fit.


I agree!  There have been times where I've encountered idiots who did not respect boundaries.  One day, I was riding the subway  with a fellow classmate, who happens to be Deaf-blind and we were conversing in Sign Language.  Without warning, some total strangers invaded our space, stuck their fingers in our ears and started praying at the top of their lungs.  I went off!  They tried to justify their actions by quoting Bible verses at me and I quoted a Bible verse back at them about they NEED TO ASK PERMISSION FIRST!  If I had REALLY lost my temper, I could have done some physical damage!  GRRRRRR!!!!!



Wow, Bonesie, that is truly shocking behaviour.  What is it with some people??!!  It takes so little effort to just be polite (or to just keep your mouth shut if that's easier!).

I hope you're sleeping better now  ((((((((((((((((((((((((((((((Bones)))))))))))))))))))))))))))))))))))))

 44 
 on: April 18, 2014, 11:36:09 AM 
Started by lighter - Last post by Twoapenny
Oh Lighter.  I can't tell you what a big smile that left me with (and a teary eye, too!).

There is nothing, nothing, nothing more amazing in this world than hearing your babies laugh Smile  Your in laws - well I have no words.  But what I can say is that they are still trapped in their dark, depressing, meaningless world - and you are stepping into a bright future with your head held high and your lovely girls by your side.

Go, Lighter!  And I will keep my eyes peeled for those crayons Smile xxxxxx

 45 
 on: April 18, 2014, 11:31:33 AM 
Started by Izzy_*now* - Last post by Twoapenny
Wow! 2½ months since I wrote.

There are 7 wounds on my left leg. I have been "horrified" with whatever in me horrifies me, but must always look for the best.

When the first Home Care nurse came, she opened the brace and dressings while Karla was here, who said "Oh F___!" and Cathie, the nurse said "This is disgraceful!"

I can now look at that leg, as it has taken me this long to be able to, and ....yes! Horrified. It will take about a year to be somewhere normal. Once a day with 2 nurses to attend, turned into 4 times in 6 weeks. I had no idea this was breaking down my skin---too much lamb's wool to be able to see.......

I was home before I knew the mess and it is finally cleaned up enough to see 6 sores around the top of my ankle (base of the brace moving up and down), and the knee the same from a strap that was too tight for compromised skin.

Nurses came here for a while and worked around the brace, then around no brace, as I accustomed myself to moving with support, then no support but my own and began going into the clinic.....yep about 1 year more. The whole negligence case has been reported to the higher up in this area!

I now have a power chair and haven't totalled it or killed anyone! (Today was my second trip with it, to the Clinic.) Will use it for going to lunch with Karla tomorrow. I plan on keeping both chairs in action, so my arms don't lose their strength.

This is the worst struggle, as I am older now, but am managing.

Love to all.

Tale Care.
Izzy

Oh Izzie.  I'm glad to see you writing again but my gosh, what in the world??!!  All I can offer you is a great big cyber hug  ((((((((((((((((((((((((((((Izzie The Great))))))))))))))))))))))))))

 46 
 on: April 18, 2014, 10:19:37 AM 
Started by Izzy_*now* - Last post by lighter
Izzy:

I say yes to therapy.  Maybe German Feeling Therapy that includes Primal Scream work?

::picturing Izz in a tiny padded little room, on LSD, being told to scream by a T with Burger King Breath::

Well....

Maybe a T who doesn't do their work in a little padded room, but in a regular office room, where you can clutch your favorite pillow, or blanket on regular furniture?

I say try it, and see how it goes.

About your will, and dd, and sibs......

you didn't ask, but if it's me making those decisions, I'd picture my child at the time you had your accident, and I'd put her in my will with that child in mind.  I'd certainly put my caretakers, and friends, in my will, but I'm wondering where they were while the skin on your legs have been falling apart in recent months. 

Why didn't they catch this, Izz?

Lighter







 47 
 on: April 18, 2014, 09:55:44 AM 
Started by Izzy_*now* - Last post by lighter
::hand over mouth.... horrified too::

Oh, Izz.....

I'm so sorry.  Is it just a basic lack in Canadian healthcare, or is it bad luck, or that your situation has been overlooked, minimized, and consistently underestimated since you were hit by the car?

I think some of each?

I think accountability would have been a good thing, though it seems there are no consequences, in any case?  In Canada? 

::sending your leg, and spirit, healing pink light::

You continue to be one of my heroes, Izz.

Light




 48 
 on: April 18, 2014, 09:47:57 AM 
Started by lighter - Last post by lighter
Things are fairly routine in the land of Light.  

The recent cold snap landed on our garden.   We were fortunate to get plastic over it in time, using tomato cages, rocks, bricks,  and dirt to hold the edges down in high winds, and many large buckets from Walmart turned over the taller tomato plants, and most of the squash.  The squash seemed happier for their 2 days under the bucket.
  
We travel quite a bit, which includes seeing my mother, who continues her brave stuggle with bc. We regularly travel back to our old city.  The children attend classes at their old school, visiting with friends, and having as many play dates as we can fit in.  It's been a blessing.  I can't imagine what the past 4 years would have been like had we not found that safe, sheltered place.  

My oldest child's class had a blast last week attending a poetry slam at the local university, during an arts festival.  We also rode rides at an amusement park.

My youngest and I cooked out with lovely friends, and their 5 dogs, a bunny and a cat, and visiting baby (I love getting my hands on a baby.)  We ate out at our favorite places, walked the lovely city in the spring sunshine, and made violet jelly with a mom who makes several varieties out of what most people consider yard weeds, but are medicinal to her.  The daddies played night frisbee with gusto, and a good time was had by all.  

We all went to see GRAVITY at the Cinema and Draft House.  We went bowling, but what really stood out on this trip....

for me......

I heard my children laugh.

A lot.

Unbridled joy.

And it made me laugh too.......  
Such a good time.

Anyway, homeschooling has served it's intended purpose.  I've loved reading SS, Science, and Literature with my youngest, snuggled up in bed, cozy and relaxed, or on the sunny porch swing, with pillows, and clean white cotton blankets.  We even camped out on the porch, in a tent, and did school work.  How cool is that!?   The kids have done school work in the car, at the hospital, at Grandma's, at their old school, and during vacations, and all times of the day, as we feel like it, or can get to it.  

At one point, while visiting my mother during a serious hospital stay, my youngest put down her computer class, and began directing nurses at the nursing station with the authority of a competent adult.  Without hesitation. Without looking to us for direction.  She just did what needed to be done, bc she saw it needed to be done, and......

I'm gushing,  but I was just so proud of her.  I would have been completely lost at that age, in that situation.  I didn't speak with that much authority to nurses when I was in my mid thirties.  

My oldest child has always been very independent.  Right now, being with her while she does her school work is like parallel playing toddlers.  She enjoys having me near her, doing my thing, but not looking over her shoulder, or participating with her.  Being the original touchy feely parent, this is sometimes a challenge for me, but it's a very happy moment when she reaches over and lets me know, with a pat, or a smile, that she's content and happy in that moment.  I have to leave that sentence just there.  It's hard to explain.  

I noticed that when I laugh happily at something, she often puts her arms around me, and shares a hug, which isn't really her nature.  If it's at bedtime, she puts her head on my shoulder, like she did as a child when being tucked in, and wants to talk and talk and talk.  To hear what I have to say.  She asks questions.  It's not often, and I cherish every second of it.  She needs to hear me laugh more, is what I take from that.  I think she's missed it.... really really missed it.  

The rough patch in our home school routine has been solved with a local Math professor, who tutors both children..... he's perfect for the job, as he has 2 dd's similar age dd's, and is used to all the female energy.  He's serious, mentors the children about college, study habits, and has a good sense of humor, which is a moral imperative in this house.  

The IL's are appealing the custody suit, of course, but I'm not worrying about it.  I've learned, everything happens for a reason, and this too shall pass.  I'll do what needs to be done, and by now I should have that figured out.  If I don't, it's just another lesson I'll share with those traveling down my path.

All in all, I feel pretty good right now.  We're planning a treasure/egg hunt on Easter Sunday, complete with gluten/dairy/sugar free Spring Cupcake baking project..... my youngest picked out flower petal baking cups.  We'll dye eggs.... I'm thinking Robin's Egg Blue, and wishing for the lovely construction paper crayons I enjoyed with my children when they were small, but can't find lately.  They write on cold eggs, wet eggs, any kind of eggs.  SO missed.

Ahem....

first world problem, we're doing great.  (.....but it anyone knows where to score construction paper crayons...... )

My oldest still playing piano.  My youngest is very funny, and chatty, and growing like a weed.  I think both will be very tall.    

It's a matter of figuring out what we want to do next, as I see it.  Where we want to live.  How we want to live.  All will be well.

It's nice to have choices, and it's nice to look at life as an adventure again.

Things are opening up for us.  It's like leaving behind sadness, and fear, doubt, and a very very long siege.

Now.....

what next?

Lighter

 





 49 
 on: April 18, 2014, 08:31:03 AM 
Started by BonesMS - Last post by BonesMS
Dear Bones,
I hope you're getting out and being blown away by some flowers.

Bones in the Flowers.

Flowerbones.

hugs
Hops

Thanks, Hops.

I did manage to get out and about when the weather warmed up.  Then the landscapers came through, doing a massive amount of work, kicking up pollen and stuff like nobody's business, and now I'm dealing with a bout of asthma.  NUTS!!!!!!   Razz

 50 
 on: April 18, 2014, 07:52:28 AM 
Started by BonesMS - Last post by Hopalong
Dear Bones,
I hope you're getting out and being blown away by some flowers.

Bones in the Flowers.

Flowerbones.

hugs
Hops

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